Tuesday, July 18, 2023
Happy Unicorn
It has been quite a while since I've posted a blog, but with all this extra time at home due to the current pandemic, I figured now was a good time to get back to it.
As I mentioned on my Facebook recently, I decided to remove my breast implants and go au natural - that really is more my style anyway. This has been a long time coming as I have known for quite some time that I didn't like having implants and wanted them out of my body. I didn't like how they looked, I didn't like how they felt, and most of all, I didn't like how they impacted my upper body strength. Since I had a unilateral mastectomy, I knew of course that without the implants I would have to have some other sort of reconstruction to create the illusion of 2 breasts - right?
When I was initially going through all of this, I was told that I wasn't a candidate for autologous reconstruction (using my own fat and tissue), but after doing some research, I found something that I would likely qualify for - a TUG flap - Transverse Upper Gracilis flap. This is an extensive, specialized surgery which would use the gracilis muscle in the thigh, along with fat, to create a new breast. I did a ton of research on this and was seriously contemplating doing the surgery - it would be a lot but then it would be done, no more implants, no future exchange surgeries, nothing. The thing was, I was nervous about cutting into my thighs. I didn't want to mess up my thigh muscle, I had already messed up my chest muscle and didn't need to mess with any other muscles. I didn't want a huge scar down my inner thigh, I didn't want them to be asymmetrical, etc. However, I truly thought this was my only option. The idea of not doing reconstruction was never presented to me by any of my doctors, and it had never entered my mind.
Once I thought about it, I couldn't stop thinking about it. I did tons of research, looked at tons of pictures, thought of myself without reconstruction, and knew that was the right decision for me. I was fortunate that the plastic surgeon I went to was accepting of my wishes and did not try to dissuade me, as I have seen many accounts of women receiving push back from their doctors, especially young women.
Now that I only have the one breast, I am what is referred to in the breast cancer community as a unicorn, and I wear the title proudly. If I want to, I wear a prosthetic on my right side, but mostly I just go half-flat.
When I was doing all of my research, I learned about Breast Implant Illness. This is not really accepted as a thing among doctors, but there are numerous accounts of women who swear that their implants made them sick, and they felt much better when they got them removed. I related to a lot of the symptoms that these women were describing. I have felt progressively more unwell throughout the years, and I thought perhaps my implants were to blame, although many of my symptoms did start before my implants. They certainly worsened greatly since I got them. Among these symptoms for me were: joint and muscle pain, chronic fatigue, memory and concentration problems, anxiety, depression, headaches, and hair loss. I was hoping that removing my implants would alleviate these symptoms, but that doesn't seem to be the case. However, recently I have felt some improvement with some of my symptoms and I think I may finally know what is to blame - iron deficiency. That is something that I have a lot of thoughts on so I will save that for a separate blog.
Adios for now! <3 nbsp="" p="">
P.S. I want to mention that I have nothing against breast reconstruction or breast augmentation via breast implants or any other surgery. I believe everyone should do what they want to their own bodies, and choosing one thing over the other does not make anyone better than anyone else. However, I do have a problem with the lack of informed consent around breast reconstruction. I was never presented with the option of going without reconstruction; when I was told I needed a mastectomy, in the same sentence I was told that I would see a plastic surgeon and would have reconstruction and look just like myself again. Of course, as a 22 year old who was terrified of having to lose a breast, that was an exciting idea for me. When I talked to the plastic surgeon, I was clear that I was an active person, particularly with swimming, and I was not warned of the affects that having implants placed under the muscle would have on my upper body strength. I suspect that had I known that my strength would be impacted, and had I been presented staying flat as an option, I may have opted for that initially and saved myself a lot of hassle.
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Monday, July 10, 2023
Random notes on dreams, discernment.
I went down a rabbit hole this morning on the word "discernment." I watched two YouTube videos on it. Apparently, God talks to us in dreams. I don't know about all that, but maybe.
I'm at a long table made of wood, kind of dark, possibly stained. It looks natural. I see the knots and lines. There are small, fake plants in white pots. There is this grand TV screen with pictures of water, boats, Rocks (why did I capitalize that?).
River rocks. The dream from the podcast I was listening to yesterday. She collected river rocks, I'm imagining dark and smooth, flat. She placed one on each desk as a touchstone to the natural world. Then, she feared that the building would collapse (these were desks on the top floor of a skyscraper). This was her dream just before 9/11.
Wow, right?
I find dreams so interesting. I also love the Fleetwood Mac song. Album? No, Rumors. Rumours? I guess it depends.
Anyway, discernment. My dream. "The ability to judge well." In spiritual contexts is what I'm interested in. "Perception in the absence of judgment with a view to obtaining spiritual guidance and understanding."
There's a lot to be said about discernment. I wonder why I dreamed that specific word? It was so prominent. The girl had a look of discernment. That part doesn't make sense to me. I would have described it as a look of peace, contentment. How does one display a look of discernment?
Later, I was listening to another podcast and I learned that as a procrastinator, my iconic identity is the Sage and discernment is my superpower. Way to go, subconscious. I don't really follow, but perhaps more will be revealed. Perhaps.
Monday, February 20, 2023
Via Transformativa
I already realized I was a work in progress, but I’m just now realizing how beautiful that is! Let me attempt to explain.
I was listening to a podcast (The One You Feed - What Creation Spirituality Means with Matthew Fox) and the guest was talking about the four paths of creation spirituality. Creation spirituality is about the sacredness of nature and our existence, and the four pathways are the "Vias": Via Positiva, Via Negativa, Via Creativa, and Via Transformatvia. He talked about how each pathway can lead to the next, and how the Via Creativa acts as a bridge to the Via Transformatvia.
I've heard all the clichés - you are enough, perfectly imperfect, etc., but I never put much actual thought into them, into believing them. I struggle with perfectionism, probably to an exorbitant degree as someone with OCD, and I realize that my struggle, my struggles, make me who I am in this moment. I'm inclined to read back over this blog, combing it for areas where I can reword things or take out a word, but I know it won't ever be perfect. It doesn't have to be! This is my craft, my creative outlet. It is only one of many, I'm fortunate to have multiple creative outlets, but so are we all! From what I gleaned from the podcast, everyday decisions are part of the Via Creativa.
The commandment of the Via Transformativa is "Be You Compassionate as You Creator in Heaven is Commpassionate." I'm not religious, though I spent a few years in college attending bible study. I needed that at that point in my life, and I will be forever grateful for that experience. It was an important part of my story.
Now, I'm spiritual, in the sense that I believe that every person has a Higher Power in them, perhaps their "good wolf" in the parable of The One You Feed podcast. I've always been a compassionate person, and I'm realizing that is thanks to all my past experiences, the good and bad. The Via Positiva and Via Negativa.
Anyway, to the point, I am realizing that I am on this path, and I am living my purpose. I am a mother, I am a nurse, I am an artist, I am a writer. I am fortunate to be on this path, even though I have suffered misfortune. My most notable recent bout of suffering was my time at Sierra Vista, but that experience shaped me into who I am today. It gave me another layer to my compassion, and it provided me with tools, coping strategies. The Next Steps program further taught me important lessons, allowing me to tease myself apart in ways that I hadn't ever before. It also taught me the importance of self-compassion.
Life is hard. Motherhood is hard. I feel like I don't have enough time to do everything I want to do, but I'm realizing I have the same amount of time as everyone else, I just have an uncanny ability to squander it. Ever since my hospitalization, I have a newfound appreciation for my freedom, and everything that I have, which makes everyday tasks a bit more time consuming. This means, there is room for improvement! I bought a timer with an intent to use it for cleaning tasks to keep myself on track, but I still need to set up the system that I want to use. That can wait, I am still a procrastinator after all.
I've changed immensely from the person I was when I started this blog, but I am still the same person in my soul. This blog is aptly named, it is simply the place I can go to speak my truth in my natural format. I am grateful to be back here. I will never be perfect, and as of now, that is okay with me.
Sunday, February 5, 2023
Motherhood changed me, a work in progress.
Tuesday, January 24, 2023
New year, new me.
11/25/22
I skipped the first page, I’m not
entirely sure why. This is such a
mindfuck, my current situation. I’m
writing in this beautiful journal that my husband brought me, with a pen that I
hate writing with. It’s the only pen I
can use, only style anyway. Regular pens
are “contraband.”
Am I in prison? No.
I’m a patient at Sierra Vista Hospital.
It is a locked down facility, and there are cameras everywhere. For all I know, someone could be watching me
while I write.
Anyway, I’m still not entirely sure
how I ended up here. I guess I had a
panic attack that escalated, and I was acting out of character? All I remember
is having difficulty sleeping, trying to talk to Michael, and suddenly, he was
driving us to Kaiser ER. (Present Michelle adding that he did the right thing by getting me the help I needed, and I thank him for that.)
I’ve gone through such a whirlwind
of emotions through all of this. I have
been so confused. The hours and days all
kind of meld together.
When I was still at Kaiser, I got
to a point where I thought I must have done something truly horrible. I don’t want to put it in writing, but
basically, I feared the absolute worst.
I’m so glad to know that that did not happen. As far as I know, my husband and baby are
alive and well.
I have so much anger around being
stuck in here, away from them. It is
breaking my heart. Every morning, I’ve
been waking up thinking, this is it!
Today must be the day! But alas, it is not. Seems like the best I can hope for is to go
home on Monday. Today is Friday. So, looks like home on 11/28 if all goes
well?
I just really want to get
home ASAP. I’ve been away from my family
for too long.
11/26/22
Here I
am, sometime after 3 PM and before 4. It
is quiet time here at Sierra Vista. I
woke up early this morning, just before 6 AM.
I tried to rest/sleep a little longer, but finally just got up and
started my day.
I’m
trying to commit to my life here. Feels
like I’m just going through the motions, but I do see the benefit in it. In being here. Kinda… haha.
I took
a full shower this morning, washed my hair and everything. I had been putting it off, thinking surely, I
would be home before I needed to wash my hair.
But, alas, that did not happen.
I ate
breakfast and lunch in the day room. I
went to both groups this morning. I went
outside when it was time, and I talked to a few different people.
Reaching
out and talking to people here is especially difficult for me, because it
really does feel like they’re all “in on it.”
Like I’m the main character in this social experiment. And no matter to whom I try to tell my
theory, nothing changes. So now I’m
trying to just acquiesce to my role here, and better myself. But I already feel great, I just need to see
my husband.
I’m back, same date.
I feel so frustrated. I was reading this book, “Illusions” by
Richard Bach. It was a quick read, and it
really felt relevant to my current situation.
As soon as I finished it, literally the moment that I closed the
book, the on-call doctor wanted to talk to me.
He said I’m doing great, but our conversation was over as soon as I
brought up getting discharged. Because,
apparently, nobody else can discharge me but Dr. Lepler. Not even myself. So much for the notion that I am my own
master, that I am responsible for myself.
Ugh, just so frustrating.
I ate dinner in the small day room,
with my roommate and another patient. I
was trying to socialize, but I was having a hard time focusing.
I’m so tired of this. It still feels like some cruel joke, like a
game, and I’m ready for it to be over so I can go home. I would even drive myself home in the dark if
they would let me, that is how ready I am. (I don’t like driving in the dark,
it is hard for me to see.)
I wanted to call my brother or
Michael, but the phone was tied up.
Maybe it’s free now…
11/27/22
Humble
pie. That is what I needed, and what I
got, being here. I have lost my
in-the-moment vision, but I’m working on it.
Sharpening it. I have been sooooo
caught up in the idea that all I need is my husband, my son, my
family. I NEED them and they NEED me,
right? So, then, why the fuck am I here?
I’m at
a point where I understand the why and how as much as possible without talking
face to face with my husband, and I am ok with that. Because, ultimately, they (the why and how)
don’t really matter in the grand scheme of things.
The
bitter pill that I’ve finally swallowed is the realization that I have been
leaning on my husband too much for my own sake.
And most likely, for his sake, too.
But I AM the one who matters more to me, and right now, I need to focus
on myself, away from them. As difficult
and as backwards as it seems, I finally realized it as truth.
It does
still feel like I’m stuck in some sort of game.
Like everyone is somehow here for me.
The conversations I hear, and even the movies and shows on the TV,
just feel too relevant. But that
can’t be, right? And, even if it is, I
need to just focus on bettering myself.
Present Michelle writing now, I
transcribed some of the notes from my time at Sierra Vista. The bolding effect of “everyone is somehow
here for me” was added by present me.
Past me meant it as the delusional thought that I was stuck in a
simulation but present me is recognizing it as the truth. I have so many people in my corner, supporting
me, I just have a very hard time asking for help when I need it.
I cringe a bit as I read the words
from my past self. I was incredibly
confused by my situation, and I was literally delusional. I belonged there, in a mental hospital, and
at the time I did not understand why.
I now understand why, and I would like to enlighten whoever is
reading this.
I have multiple mental health
diagnoses. I was diagnosed with ADHD
toward the end of last year, and I was prescribed Adderall. I was also taking Zoloft for depression. However, what I did not know, was that I
don’t have depression, I have bipolar disorder.
Being on Adderall without also being on a mood stabilizer sent me into a
manic episode complete with psychosis. But
wait, there’s more! Another thing I’ve
learned since my release from the hospital is that I also have OCD.
I’ve been wanting to share my
story, to put myself out there, in the hopes that it can help even one
person. Also, selfishly, I’m doing this
for me. I am not ashamed of my diagnoses,
nor of my time in the mental hospital. I
am who I am, and I am proud. My
diagnoses do not define me, but they do shape who I am. I’m not looking for judgment or pity, I’m
just looking for acceptance. I accept
myself enough to know that sharing my story will help me, and that is enough
for me.